Eosinophilic Enteropathy Overview

Eosinophilic esophagitis (EoE) is an allergic inflammatory disease where eosinophils, a type of white blood cells, are found in elevated levels in the esophagus. When the esophageal lining is inflamed, it can cause children to have discomfort and decreased appetite. They may become cautious or very “picky” around food. Some begin to refuse all but a very limited number of foods. Children with EoE commonly also have other allergic diseases such as asthma, eczema and “runny nose.” 

(learn more details at www.apfed.org)

Medical treatment varies. Some children are put on highly specialized formulas. Others are put on very restrictive diets with elimination of some foods such as gluten, dairy, soy, eggs, corn, peanuts or tree nuts, and fish or other seafood. Complete elimination of some of these foods can require a whole new way to read food labels and ingredients. Parents often need support with dietary changes, restrictions and teaching their children to trust food again.

Nourish provides an Eosinophilic Esophagitis (EoE) Parent Support Group facilitated by a dietitian and parent. Once the medical team has made a diagnosis and specific recommendations for a child, the support group can offer nutritional information and parent to parent assistance.

Eosinophilic Enteropathy Helpful Links

American Partnership for Eosinophilic Disorders (APFED)
American Partnership for Eosinophilic Disorders (APFED) is a non-profit organization dedicated to patients and their families coping with eosinophilic disorders. APFED strives to expand education, create awareness, and support research while promoting advocacy among its members.
www.apfed.org

Compounding Pharmacies in Tucson
These pharmacies will work with you on allergen free compounding of medications.
www.reedsrx.com/
www.rxlab.com/

Corn Allergens List
www.cornallergens.com/list/corn-allergen-list.php

EGID Community
Join us on Facebook
www.facebook.com/pages/EGID-Tucson-Support-Group/221739304505446

Eosinophilic Support Group Tucson
www.eosinophilictucson.com

Kids with Food Allergies: Food Allergy Support/Allergy Free Recipes
Costs $25 to access.
www.kidswithfoodallergies.org

Mealtime Connections, LLC
Mealtime Connections, LLC brings together a group of therapy professionals who are passionate about understanding and treating infants and young chidren with developmental delays and feeding difficulties. We specialize in working with families and children with complicated medical and feeding concerns which may be related to diagnoses such as cerebral palsy, autism, prematurity, genetic disorders, Down syndrome, and general developmental delays. We also provide comprehensive treatment for medically based challenges such as oral aversion, reflux, food allergies, poor weight gain, swallowing difficulties, gastrointestinal concerns, and G-tube transitions. We are located in Tucson, Arizona.
www.mealtimeconnections.com

NPR Story “How to Read a Food Allergy Warning Label”
Vikki Valentine, May 9, 2007
www.npr.org/templates/story/story.php?storyId=10096779

Books We're Reading

Elimin 8 Plus Corn by Betsy Chabin
www.amazon.com/Elimin-Allergy-Cookbook-delicious-allergens/dp/0557306752

Food Allergy, Survival Guide by Vesanto Melina, MS RD, Jo Stepaniak, MSEd, and Dina Aronson, MS RD

The Food Allergy Mama’s Baking Book by Kelly Rudnicki
Great Dairy, Egg, and Nut Free Treats for the Whole Family

Understanding and Managing Your Child’s Food Allergies by Scott H. Sicherer, MD